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Last week, I sat in the dentist’s chair filled with gratitude. I know. It’s bonkers. But I couldn’t help myself. I&#8217;m grateful knowing that if I have to <a href="https://alsnewstoday.com/living-with-als-2/">live with ALS</a>, it’s happening at a time when advances in technology and accommodations help me deal with its many challenges.
Not only am I living with a new normal, but many healthcare providers also have a new normal — one that I’m happily discovering helps them accommodate all kinds of patients’ needs.
Before I had <a href="https://alsnewstoday.com/what-is-als/">ALS</a>, I always followed the recommended guidelines for annual exams, participated in my employer’s work-site wellness screens, and made sure my immunizations were up to date.
But the combination of my ALS and my age have whittled down my list of exams and screenings into something much shorter. Plus, I need accommodations.
[recommended-reading id=80750]
<h3>Pardon my neediness</h3>
Now, I have to arrive places either pushing a walker and <a href="https://alsandwellness.blogspot.com/2021/03/how-i-learned-to-like-my-afos.html">wearing ankle-foot orthoses</a> or needing extra turnaround room if I’m riding my mobility scooter. I used to be nervous that no one would understand my answers to important questions, as I have speech issues. And at the dentist, I&#8217;d worry that being unable to lean back in the chair because of breathing issues and being unable to tolerate water in my mouth due to <a href="https://alsnewstoday.com/columns/als-hard-act-swallow-tips/">swallowing issues</a> would impede the care I received.
During the past few years, however, I’ve learned that modern healthcare providers can accommodate just about everything.
My dentist tilts me back, but a nifty neck pillow keeps my throat upright. A stretchy plastic “shield” (called a dry shield) protects my throat from water, and I hold the suction tube so I can chase stray water droplets during the entire procedure. Instead of requiring multiple follow-up visits to replace a cracked crown, the procedure is completed in a single three-hour appointment. The new crown is created on-site via a 3D camera and a <a href="https://henryscheinequipmentcatalog.com/cad-cam/dental-mills?supplier_id=112&amp;utm_source=google&amp;utm_medium=CPC&amp;utm_campaign=Google|CPC|LP_CADCAM|CEREC-CADCAM-Logical-Position&amp;utm_content=RSA&amp;utm_term=CEREC-CADCAM-LogicalPosition&amp;gad=1&amp;gclid=Cj0KCQjwldKmBhCCARIsAP-0rfwe3rUmb5mSVjvoPHShheF2rUdD056eF5UMIXmym7A7mBI-Aga6Tn8aAr5TEALw_wcB" rel="nofollow">special milling machine</a>.
Every fall, I ride my mobility scooter right into my local pharmacy and get my flu and COVID-19 vaccines. I don’t even have to get off my scooter — the pharmacist comes to me. I even scooter in to see my dermatologist. Once in the exam room, I pivot the scooter’s seat, and it’s as if I’m seated in the exam room’s chair.
<h3>It&#8217;s a win-win</h3>
I’ll admit that living with ALS and coping with all its associated health needs can be challenging, especially when <a href="https://alsnewstoday.com/columns/my-als-prognosis-affects-how-i-wrestle-with-making-decisions/">wrestling with decisions</a> comparing the financial investment with our limited <a href="https://alsnewstoday.com/prognosis-of-als/">prognosis</a>. But thanks to advances in technology, <a href="https://alsnewstoday.com/approved-treatments-for-als/">treatment</a>, and <a href="https://alsnewstoday.com/symptoms-of-als/">symptom management</a>, many ALS patients are experiencing a higher <a href="https://alsnewstoday.com/news/ninds-sets-new-priorities-als-research-improve-life-quality/">quality of life</a> over the course of their disease than in the past.
I believe that my commitment to maintaining my regular health screenings has contributed to my current good health, along with pausing to recognize and be grateful for the healthcare providers who’ve taken the extra step to accommodate my needs.
If you&#8217;re worried whether your local healthcare provider can accommodate your particular needs, just call ahead and discuss it with them. You just might be surprised to hear, “No problem. We can do that.”
Make taking care of your health beyond dealing with ALS symptoms a priority. It’s all part of learning to live well with ALS.
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Note: <a href="https://alsnewstoday.com/">ALS News Today</a> is strictly a news and information website about the disease. It does not provide medical advice, <a href="https://alsnewstoday.com/als-diagnosis/">diagnosis</a>, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to ALS.

How my dentist handles my speech, breathing, and swallowing issues

Even though I continue to <a href="https://alsnewstoday.com/columns/talking-my-way-through-2020/">practice daily voice skills</a> to help me prepare for in-person conversations, I’m still challenged by the pronunciation of certain words. Often, I avoid the word altogether and use a simpler version. Or I simply plow ahead, slurring and bumbling my way and relying on lots of body language to convey what I want to say.
But I’m happy to report that I’ve adopted an innovative strategy that&#8217;s been helping me learn to speak clearly and with more ease. This is all part of my continuing quest to prevent my <a href="https://alsnewstoday.com/what-is-als/">ALS</a>-related <a href="https://alsnewstoday.com/speech-problems/">dysarthria</a>, or speech disorder, from robbing me of my ability to speak.
<h3>Challenges and strategies</h3>
Some strategies I’ve incorporated before include improving my posture, strengthening my diaphragm, and even using a <a href="https://alsnewstoday.com/columns/microphone-voice-hear/">personal voice amplifier</a>. All good things to do, but <a href="https://alsnewstoday.com/columns/als-breathe-well-balloons-bubbles/">breathing better</a> and having more volume can’t help me improve my pronunciation. For example, when I say, “Hand me the spoon,” it sounds more like, “Han MEE da sch-POON.” Certainly, not what I intend to sound like.
Going online, I searched for suggestions from others who share my word pronunciation dilemma and discovered that nonnative speakers have challenges similar to mine. Learning English as a second language (ESL) also means learning to make new and difficult sounds, plus adopting a <a href="https://youtu.be/YTprZdCLAf8">unique rhythm</a> within each sentence.
Fortunately, this topic has a wealth of online resources, including YouTube videos focused on helping nonnative speakers learn to converse in English. Plus, following the videos makes it fun to practice.
[recommended-reading id=40537]
<h3>Exploring new sounds</h3>
As an example, for the <a href="https://www.youtube.com/watch?v=tPpXzrAgjxs&amp;feature=youtu.be">“R&#8221; sound</a>, as in “rah, row, rear,” I can watch a helpful explanation of how to position my lips and tongue to create the sound, practice some drills, and then try a few tongue-twister phrases.
On some days, I create my own version of the TV show &#8220;<a href="https://www.imdb.com/title/tt0063951/" rel="nofollow">Sesame Street</a>.&#8221; I pick a letter from the alphabet, and every time the letter’s sound shows up in my conversation, I pause, relax, and try to pronounce it correctly.
At one time, I&#8217;d developed the habit of trying so hard to say a particular word that I ended up exaggerating it to the point of adding extra syllables. When I said “please,” for example, it often became “PUL-LEE-SSS.” Now when I say the word, it sounds more like a simple “pleeez.”
<h3>The test</h3>
Recently, our daughter visited us for a week, and I had the opportunity to put my ESL-enhanced speaking skills to the test. Because she lives a distance away, we’ve had to rely on phone calls and Skype for the past year, so I really looked forward to our in-person conversations. But I still secretly worried about how I sounded.
Several times during the week, she’d remark, “Mom, I can understand you so well. Your speech has really improved.”
Oh my gosh, that made me feel so good.
Are you experiencing challenges with learning to accommodate your dysarthria? If so, I invite you to try my strategies and tips. Let’s learn to live well while we <a href="https://alsnewstoday.com/living-with-als-2/">live with ALS</a>.
<hr />
Note: <a href="https://alsnewstoday.com/">ALS News Today</a> is strictly a news and information website about the disease. It does not provide medical advice, <a href="https://alsnewstoday.com/als-diagnosis/">diagnosis</a>, or <a href="https://alsnewstoday.com/approved-treatments-for-als/">treatment</a>. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to ALS.

Tag: speech

How my dentist handles my speech, breathing, and swallowing issues

A new perspective and strategy to help my ALS speech