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<a href="https://alsnewstoday.com/what-is-als/">ALS</a> challenges our sense of self and ability to accept change. However, the triggers that motivate us toward acceptance can be different for each patient.
Recently, on the <a href="https://alsnewstoday.com/forums/">ALS News Today Forums</a>, we’ve been having a lively response to the question, “What is the most difficult thing for you to do physically, now that you <a href="https://alsnewstoday.com/living-with-als-2/">live with ALS</a>?” Among the many replies were having difficulty breathing, asking for help, and losing independence. Other forum members identified moving, speaking, and swallowing as being the most difficult for them.
My <a href="https://alsnewstoday.com/symptoms-of-als/">ALS symptoms</a> affect my <a href="https://alsnewstoday.com/columns/als-slow-lane-cruise-through-life/">movement</a> and speech and prevent me from <a href="https://alsnewstoday.com/columns/als-hard-act-swallow-tips/">drinking thin liquids</a>. Although we share having to live with these daily challenges, we’re not all in the same phase of acceptance. Many comments also included feelings of bitterness, frustration, and being seen as different — all feelings I experienced during my first year with ALS. How I eventually conquered them came from an unlikely source.
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<h3>A doggy inspiration</h3>
Shortly after my <a href="https://alsnewstoday.com/als-diagnosis/">diagnosis</a> in 2010, I watched a TV program featuring an animal rescue organization that was rehabilitating dogs with catastrophic injuries. One young dog had to have a hind leg amputated and was learning to run with only three legs. Another young pup’s hind legs were partially paralyzed and had been outfitted with a special wheeled body brace giving the pup the ability to roll from place to place.
Certainly, the medical innovations were impressive, but what held my attention was how these two dogs interacted with a group of “normal” dogs. The two didn’t act embarrassed or self-conscious of their disabilities, nor did they avoid mingling with the pack. And the other dogs accepted these two as if nothing were amiss. The two pups joined the ongoing wrestling and doggy play, proving they still were fun-loving dogs at heart.
At that moment, I decided to channel the attitudes of the pup on wheels and the three-legged dog. I realized that even though my symptoms changed how I would navigate through life, they didn’t change my sense of self. I was, after all, still me.
<h3>That’s the thing about ALS</h3>
ALS may slow down my movements, force me to use a wheeled walker to get around, require I thicken my beverages with a special powder, and make me slur my words. But I don’t feel awkward or insecure, or worry that people are judging me as less than. I’ve accepted my difficulties and adopted the necessary <a href="https://alsnewstoday.com/2018/10/16/als-adaptability-art-3-simple-steps/">adaptations</a>. My focus is on <a href="https://alsnewstoday.com/2019/02/12/living-purpose-projects/">my projects</a>, family, and friends.
Nothing is easy with ALS, and it’s important to remember that attitude has everything to do with how much you can enjoy your life. I remind myself that I can’t always avoid the changes and difficulties that ALS brings, but I can change how I react to them.
Remember, I believe we can live well while living with ALS.
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Note: <a href="https://alsnewstoday.com/">ALS News Today</a> is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or <a href="https://alsnewstoday.com/approved-treatments-for-als/">treatment</a>. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to ALS.

How a 3-legged pup inspired me to start accepting life with ALS

I have a vivid and beautiful memory from a few summers ago, as my late husband, Jeff, and I <a href="https://alsnewstoday.com/living-with-als-2/">lived with his ALS</a>.
We were spending a day on the water, as we often did. Jeff had <a href="https://alsnewstoday.com/living-with-als/speech-and-communication/">lost his voice</a> and most of his <a href="https://alsnewstoday.com/symptoms-of-als/">ability to walk</a>, but still had the upper body strength and the determination to captain the boat. In my mind, I can still see Jeff with his right hand on the steering wheel and his left hand resting on the back of our dog, Rudder. Both of them were wearing genuine expressions of joy.
From the image, you’d never know that these were among the most wrenching days of our lives. Both Jeff and Rudder were living with terminal illness — Jeff with <a href="https://alsnewstoday.com/what-is-als/">ALS</a>, Rudder with an aggressive cancer. Behind the camera, I was acutely aware of the preciousness of our days, eager to soak in every ounce of happiness and memory, desperate to stave off the fears of how I’d go on without these two.
Every couple has shared joys that define them, and having dogs was one of those bonds for Jeff and me. Since our third date, we’d been bringing our dogs along on everything from hikes to boat rides to dinners out. They brought us laughter, companionship, and devotion — all things that buoyed us in the best of times and turned out to be crucial for the yet unknown challenges ahead.
<figure id="attachment_87212" aria-describedby="caption-attachment-87212" style="width: 385px" class="wp-caption aligncenter"><img loading="lazy" decoding="async" class="wp-image-87212" src="https://alsnewstoday.com/wp-content/uploads/2023/09/rudder-jeff-juliet-e1695916457930-679x800.jpg" alt="An outdoor winter photo on a wooden deck or walkway overlooking a lake or marsh shows a man in a wheelchair covered in a blanket and wearin a blue winter coat. He looks to his right at a woman standing behind him in a black, puffy winter coat and a baseball cap. She looks to her left - both are looking each other in the eyes and smiling. To their right is a dog that looks off in the distance with his tongue sticking. It appears the dog is smiling, too. " width="385" height="454" data-wp-pid="87212" /><figcaption id="caption-attachment-87212" class="wp-caption-text">Rudder, Juliet, and Jeff enjoy a walk near their home on Christmas Day, 2019. (Courtesy of Juliet Taylor)</figcaption></figure>
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By the time Jeff was <a href="https://alsnewstoday.com/als-diagnosis/">diagnosed with ALS</a> in the fall of 2018, we&#8217;d lost two of our three dogs to illness and old age. Only Rudder, whom I’d brought to the relationship, remained. He was my “heart dog” — an old soul who was exceptionally perceptive to human emotions. During the scary and uncertain days leading up to Jeff’s ALS diagnosis, Rudder was ever-present, shouldering, perhaps unfairly, much of our need for comfort and reassurance.
The week of Jeff’s diagnosis, when he and I were stoic for each other but privately reeling, I noticed Jeff and Rudder sitting on the dock at our home, staring out together over the water. I yearned to run and comfort Jeff, but realized that Rudder was already doing so, perhaps in a way that I couldn’t. As we processed our heartbreaking news, I too found solace in Rudder. On our short daily hikes, I sobbed as we walked side by side, not wanting Jeff to see me cry once we were back at home.
As his <a href="https://alsnewstoday.com/stages-of-als/">ALS progressed</a>, Jeff chose many activities based on whether Rudder could join, selecting beaches with hard-packed sand so that they could still walk together without Jeff tripping, or opting for driving vacations rather than flying so that we could bring Rudder along. Meanwhile, Rudder accepted Jeff’s growing physical limitations with grace. He’d walk slowly alongside Jeff’s <a href="https://www.youralsguide.com/als-power-wheelchair-guide.html">power wheelchair</a>, or gamely fetch a tennis ball while Jeff could still throw one for him. Watching the two of them together was, for me, bittersweet and moving.
The summer after Jeff’s diagnosis, he saved Rudder’s life, discovering him in the middle of the night with a condition that led to an emergency surgery and, unfortunately, a resulting cancer diagnosis. As we’d frequently done during Jeff’s time with ALS, we opted to double down on memories and experiences, seeking to create even more joy with our beloved pet. Upon Jeff’s wish, that summer was filled with boat rides, walks, and trips to the dog park.
A few months later, Jeff suggested we adopt a companion for Rudder. One could argue that the timing of a second dog was questionable. Jeff was nearly fully paralyzed, and our plates were full with medical appointments, caregiving, and living with the daily challenges of ALS. Yet somehow we both knew that bringing a new pet into the household would be a positive thing. It was a nod to living rather than dying, consistent with the philosophy that Jeff had embraced since his diagnosis.
Sailor joined our family just a few weeks later. Far from an old soul, Sailor’s antics and silliness were a welcome addition to our household. She fit right in, adoring Jeff and Rudder from the start. Our band of three became, effortlessly, a team of four.
I lost Jeff six months later and Rudder five months after that.
Though grieving, I’m still grateful for so much — for Jeff, for Rudder, for the memories we made together. And I’m grateful for Sailor, too. I realize now that she was one of Jeff’s final, most selfless gifts to me — a living bridge to the time he and I had together, to the love of dogs that we both shared, and to his wish that I keep experiencing joy, loyalty, and, yes, laughter, too.
<figure id="attachment_87213" aria-describedby="caption-attachment-87213" style="width: 500px" class="wp-caption aligncenter"><img loading="lazy" decoding="async" class="wp-image-87213" src="https://alsnewstoday.com/wp-content/uploads/2023/09/rudder-and-sailor-bed-380x285.jpg" alt="Two dogs - one older and one a puppy - lie on a tan doggie bed or cushion on a wooden floor. The older dog is resting its head on its paw while the puppy chews on something. It is an adorable scene. " width="500" height="375" data-wp-pid="87213" /><figcaption id="caption-attachment-87213" class="wp-caption-text">Rudder shares his bed with his new sister, Sailor, in 2019. (Photo by Juliet Taylor)</figcaption></figure>
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Note: <a href="https://alsnewstoday.com/">ALS News Today</a> is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or <a href="https://alsnewstoday.com/approved-treatments-for-als/">treatment</a>. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to ALS.

Tag: dogs

How a 3-legged pup inspired me to start accepting life with ALS

How dogs brought comfort and joy during life with ALS